We’re all about helping Canadians who want to learn about or who are impacted by the different blood disorders know together as Myeloproliferative Neoplasms, or MPNs.
Myeloproliferative Neoplasms (MPNs) is the name given to a group of conditions sometimes referred to as blood cancers.
MPNs originate in the bone marrow – the soft tissue in the middle of the bones where blood cells are made. In a healthy person, bone marrow makes blood stem cells that, in time, develop into mature blood cells – red blood cells, white blood cells or platelets.
For those not already familiar with MPN Genie, it is a quality-of-life tracking tool allowing MPN patients to track their symptoms and quality of life indicators on a regular basis and share this data directly with their health care providers, enabling more effective quality of life and symptom management over time, as well as higher-value face to face interactions between them and their doctors.
The app is free and can be downloaded from both the Apple Store and Google Play. It runs on iPhone, iPad, and Android phones and tablets. NOTE: If you were part of the testing, delete that version of MPN Genie from your device and reinstall it.
Users are invited to attend an online MPN Genie webinar to introduce them to the app and show them how best to use it. Here is the link to register for one of two webinars: https://www.cmpnrf.ca/latestnews.