Other MPN Resources

Canadian MPN Network

Clinical Trials

To locate MPN-related clinical trials across Canada go to: www.canadiancancertrials.ca. Another very useful website for clinical trials is the US Clinical Trials website which tracks trials all over the world: clinicaltrials.gov

Useful Websites & Organizations

Other websites you might find useful are listed in this section. While we consider the organizations behind these websites to be very reputable, the Canadian MPN Network is not responsible for any of the content on these websites. (Click on the Group header to go that group.)

Canada

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The Canadian MPN Research Foundation was established in 2018 to stimulate and fund new and existing research initiatives and projects for Myleoproliferative Neoplasm Blood Cancers in Canada.

Formed in 2014, the Canadian MPN Group is a group of Canadian health care professionals interested in promoting clinical care, clinical or laboratory research, and support for patients with an MPN.

The CML-MPN Quebec Research Group is a non-profit organization of Quebec hematologists founded in 2011. It aims to facilitate innovative clinical research in CML and MPNs, optimize clinical management of CML and MPNs, including facilitating the transfer of new research findings into clinical practice, and offer continuing professional development opportunities to its members about CML and MPNs.

CORD is Canada’s national network for organizations representing all those with rare disorders

The Leukemia & Lymphoma Society of Canada (LLSC) is a non-profit organization dedicated to funding blood cancer research and providing patient education and patient support.

The Canadian Cancer Society is a national, community-based organization of volunteers whose mission is the eradication of cancer and the enhancement of the quality of life of people living with cancer.

Wellspring is a network of community-based support centres offering programs and services that meet the emotional, social, practical and restorative needs of people living with cancer and those who care for them.

United States

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The MPN Research Foundation’s goal is to stimulate original research in pursuit of new treatments – and eventually a cure for PV, ET and MF.

MPNforum magazine is an open-source magazine founded in 2011 along with the MPN Quarterly Journal (see below). It publishes stories, features and by-line columns that impact the patients suffering from myeloproliferative neoplasms. The Forum independently reports on events, people and scientific research affecting the MPN community.

Published by MPNForum, the MPN Quarterly Journal is an online journal that provides “commentary on the season’s scientific findings and MPN events.”

MPN Advocacy and Education International is dedicated to providing knowledge, support and resources for patients with myelofibrosis, polycythemia vera, and essential thrombocythemia as they adjust to living with an MPN.

The American Society of Hematology (ASH) is a professional organization representing hematologists. It was founded in 1958 and holds an annual meeting in December of every year that attract thousands of medical professionals. The site offers access to professional medical papers. Use the SEARCH box at top right of screen to look for articles related to your MPN.

Blood is a peer-reviewed medical journal published by ASH (American Society of Hematology) Content is accessible online.

Patient Power, hosted by Andrew Schoor, contains a number of informative videos of interviews with well-known MPN medical specialists. To access the MPN section of this website: Click “Myeloproliferative Neoplasms” in the menu on the left side of the screen.

PV Reporter was created to provide “easy access” to pertinent information on PV, ET and MF by utilizing a custom search engine, MPN Search, which indexes research data, reports, stories, and news items from some of the best reference sources in the MPN world.

The National Cancer Institute is the United States government’s principal agency for cancer research.

Cancer Support Community describes itself as “A Global Network of Education and Hope.” CSC services include support groups, educational programs, healthy lifestyle classes, opportunities for social networking and help locating resources.

Health information from one of the leading medical centres in the United States. Search on the site for the topic you are interested in.

Health information from one of the leading medical centres in the United States. Search on the site for the topic you are interested in.

The NCCN is an alliance of 27 leading cancer centers in the US and they have published an excellent guide on MPN’s.

United Kingdom

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Disease and health information about MPNs.

MPD Voice is a British MPN site that offers a number of resources about myeloproliferative disorders (MPDs), living with MPDs, treatments and research. Note: Descriptions, names of disorders and treatments may differ from what they are called in Canada (e.g. hydroxyurea is called “hydroxycarbamide”).