Track Your Symptoms

If your doctor recommended the “watch and wait” approach to managing your MPN, it’s vital that you keep your doctor up to date about how your symptoms are affecting you.

With a condition that progresses slowly, it can be hard to identify when the symptoms have reached a level where they are disrupting your life, because you can sometimes end up adapting to them as they develop. A solution is to use a symptom tracker to make sure you have a useful conversation with your doctor.

A symptom tracker is a chart which you can fill in every week to show how severe your symptoms are or how they are changing. This will give you peace of mind that the “watch and wait” process will not go on too long, and that you will be able to talk to your doctor about appropriate management when you feel you need it.

Take a minute to assess your symptoms

Take a few minutes to print out and fill in the Myeloproliferative Neoplasm Symptom Assessment Form Total Symptom Score (MPN-SAF TSS). Developed by a world-leading expert, this simple questionnaire is a useful way of assessing your symptoms, and can be used for all MPNs.

By completing this form on a weekly basis, it may help you when talking to your hematologist about how your symptoms impact your day-to-day activities.  This will help you work out together how best to manage your condition.

Download the form here.